Friday, October 5, 2018

10/5/18 during migraine

I'm supposed to go out to the fair with jacob tonight.  But, I'm on day 2 of my head hurting so bad. 
Now basically all I want to do is get to the point where I can pass out.  I know that doesn't make much sense.  And it's definitely not the "right" thing to do.  But, the right think is getting me nowhere.  The tylenol. advil, excedrin...it doesn't nothing to touch my pain.  But people don't care.  I doubt I'll even publish this because I don't want the drama associated with it.  When I say drama, I mean people who want to care, but have no way to care.  Don't tell me to go to the dr.  It doesn't help.  Don't tell me to pray or take supplements because it doesn't happen. 
This is what I'm saying when I say I mean there's a difference between suicide and just wanting it all gone.  I just want to sleep for a while.  LIke a week maybe. 
For some people that may sound suicidal. For me...it's the furthest thing from it.  I know what it's like to feel suicidal.  I've been there.  I've taken the steps.  And thank God it didn't work.  So, I know that isn't this.

I just want to sleep until this pain is gone. When I sleep for hours and wake up and still have pain, it's such a gut wrenching feeling.  Especially during the week when I have to get up and get the kids off to schoool and then still get stuff done.  The stuff I'm doing to try to make money for my family.

Thursday, October 4, 2018

During Migraine Blog

So a little over an hour ago I was hit with (another migraine.) I wanted to post real quick while I still can. 
Last week I had a migraine that lasted all week and landed me in the ER to get some relief.  I don't want that to happen again.
But, I want to blog about some things that happened during that last migraine that have me concerned. 
1.  That is lasted so long.  A couple days is pretty normal for me.  And I can usually get over it without having to go to the er. 
2. The memory loss I have associated with migraines recently.  I don't remember a lot of things that happen during the course of my migraines lately.  Even the next day or days later I will have no recollection of it. 
3.  At the end of last week I was having trouble texting.  That doesn't seem like a big deal...but I use my phone A LOT, so I text pretty quickly and accurately.  But, I was texting and it was all just a jumble of letters.  Even a day or so after my trip to the ER I hesitated when I picked up my phone to text because I wasn't sure if my fingers were going to cooperate with me.  At one point last week I was fairly certain I must be having a stroke.

Anyways...I just wanted to put this info out there as I'm in the beginning stages of another migraine. I hope it doesn't get as bad as the last one. But if it does, I want to have documented proof.

:)

Wednesday, August 1, 2018

And update without really an update

I saw a dr.  well, an NP.  But I've seen her before and I trusted her.  She got me all my prescriptions that I brought up.  what I didn't bring up was anxiety.  Because I felt what I was typically feeling was not really anxiety.  But the more I research it, the more I really think it is a form of anxiety. So I need to get that checked out. I still haven't been able to go get botox.  Out new insurance starts today 8/1, so hopefully, soon I can get in with a dr who will put me through the referral process with the dr I've already seen for botox once. So if I could get the migraines and anxiety under control I would be doing pretty good. 

I'm still not where I want to be in my business and that gives me so much stress and anxiety that I barely even want to walk into the room. I don't want to look at the stuff I could be doing.  Because I'm so stressed about doing it wrong. SO most of the time I just ignore it;  I'll sit in my chair and crochet because I can't mess that up too bad. 

Most days being a housewife is hard.  And most days it probably is ALL IN MY HEAD.

Tuesday, July 10, 2018

Why I will speak openly with my kids about my suicide attempt

This topic has been on my mind for a while now.  When I attempted suicide last February, thankfully, my kids were too young to know what was going on.  And thankfully, they've experienced enough with my chronic illnesses that they are compassionate and loving and fully aware that mommy is sometimes (a lot of times) sick. 

Because they are still too young to talk about chronic depression and suicide, a lot of people would say "just don't tell them." But that's not me.  I've spoken openly about my chronic depression and my suicide attempt.  I won't shut my kids out. 

I will talk about it because I want my kids to know that it had nothing to do with them.  It had nothing to do with me not wanting to be their mom, but had everything to do with me not wanting to be anything for anyone.  

I will talk about it because I want them to know that depression is nothing to be ashamed of.  It's nothing that you have to keep a secret.  And that sometimes talking about it actually makes it better.

I will talk about it because I need them to know that I can't promise I will never get to that place again.  That place where I feel suicidal.  But, I need them to know that I will always do everything in my power to NOT get to that place.  To recognize the warning signs.  To reach out.  To always take my medicine. 

I will talk about it because I know how lucky I am to still be here.  How lucky I am to still get to be their mom. 

I will talk about it because I need them to know that people can be that sick and get better.  That it won't always be that bad. 

Most of all I will talk about it because it needs to be discussed.  Suicide and depression are very real.  And even if other people don't understand it, it's real. It's real. And we have to talk about it.

So no.  I will not keep my depression and suicide attempt a secret from my children.



Thursday, March 1, 2018

CBD Oil

It's been a while since I posted last, so I'm not sure if I mentioned that my neurologist changed my daily medicine from Neurontin to Depakote.  There may have been a slight difference when I changed, but it still wasn't working as well as I would like it to.  We have tried everything. 

*"preventive meds"
*Essential Oils
*Excendrin
*Urgent Care
*Botox

Nothing seemed to be working.  So I had A LOT of friends tell me I needed to try CBD oil.  I have read about it before and have bee willing to try it for a while.  But I never brought it up because I knew Jacob would instantly link it to marijuana and say no.  But after he saw all the people talking about how much it had helped them, he read about it, and said, "let's try it." I was so excited!  People have been able to get off pain meds, depression meds, anxiety meds...it sounds amazing.

We found a reputable place nearby and went to talk to them.  We ended up getting a bottle to try out. 
I got grape flavored.  Let me tell you this...it's gross!  Mixed with mountain dew I could barely taste it.  Fruit juice or orange juice masks it pretty well also.  I've done the droppers just in my mouth with nothing else and it's intense. 

I was trying half a dropper in the morning and half a dropper at night. 
It wasn't like an instant thing, where I did it and the pain just went away.  But, I woke up the next morning pain free.  It's been really awesome.  I did have to switch to taking a full dropper at night and nothing in the morning because it was making me so tired.  I literally couldn't get out of bed. 

I've had a few migraines since I started taking it.  But they've mostly been low on the pain scale (1-2) and I've bee able to take some Excedrin and they go away. 

I've been out of bed so much more since I started taking it.  I'm getting to spend time with my kids and husband. 

As happy as I am to be out of pain, I still feel like I'm walking on eggshells.  Like I'm waiting for the big one to hit.  This morning my head is hurting pretty good, but I'm taking some tylenol, resting, and trying to kick it before this afternoon.

I haven't noticed a change in my depression.  But I've come to terms with the fact that I will always be on an anti-depressant.  That's just how my brain works. 

Overall I've been so happy with it.  Even if it's just a placebo effect...I don't care!

Monday, December 25, 2017

Update

Hey  y'all.  Sorry I kinda went MIA.  It's been a rough  few months.  I've been having some pretty severe migraines recently.  But I think I'm finally back on track so I want to give a little update. 

In October my FMLA got approved.  A combination of things happened then.  My migraines seemed to take a significant turn for the worst, my depression quickly followed suit, and I was left hanging in the crossfire.  With the FMLA came the realization that I no longer had to push myself to work through the pain I was feeling.  Which, I still strongly believe that no one should have to do.  But, as I've explained before, being laid up in bed with a migraine makes my depression worse, and it's an endless cycle.  So there have been days where maybe I could have pushed myself to work through the pain, but I didn't feel the need to, because I have FMLA days to cover me. 

In combination with some other life things that are going on, my depression has been up and down.  After all these years it's still weird to me how it can seemingly fluctuate drastically from day to day.  But as of a couple weeks ago I have added some wellbutrin back in with pristiq and it seems to be helping. 

Now for the big update!!!  After talking with my PCP for the better part of a year about doing botox for migraines, she finally agreed to refer me out.  It took a LLLLOOONNNGG time for the neuro referral to go through because apparently the neuro that typically works with my insurance had recently quit, so they were kinda in limbo.  I was finally able to see a neurologist towards the end of November.  After going through my history and doing an exam, he agreed that we should definitely give botox another try.  They scheduled me for December 20 and sent off the pre-authorization to the insurance. I didn't hear back from them so I started to get worried.  I made some phone calls, and left some messages (which is a big deal for me because I have major phone anxiety).  They called me back on the 19th and said it was approved!!  So I went 5 days ago to have my first round of botox injections.  It hurt just as bad as I remember.  But I'm willing to do anything to have more than 5 pain free days per month.  Driving home afterwards I started to get a migraine.  But I just figured it was a combination of stress and weather (it's finally turning winter in Oklahoma).  The rest of the day was ok.  The dr had told me it could take 4 days for the botox to take full effect.  I knew it hadn't really set in yet because I could still move my eyebrows and wrinkle my forehead. I had started to get the cold that my dad  had been battling for about a week, so before bed I took a couple nyquil capsules.   I woke up in the early morning hours with a searing, stabbing pain through my left eye.  I've experienced this a couple times before so I wasn't overly concerned with it.  It wasn't gone by the time my alarm went off, so I called in to work, took some excedrin and benadryl and finally fell back asleep.  When I woke up the pain was at a more manageable level.  I googled botox side effects and quickly learned that headaches are unfortunately one of the side effects.  I generally don't experience a lot of side effects from meds, and I didn't remember this from the last time I had botox, but it's been a while.  And I figured I wouldn't take any more nyquil just in case.  The next few days were hit or miss.  Some migraines, and some pain free/less pain times.  Once again, the weather is changing, I'm stressed, and sick, so these could all be factors. 
Today is Christmas!!  Sleep was hit or miss.  Between feeling sick and coughing, and my normal insomnia, I probably got about 6 hrs of sleep.  We were up early to see if Santa came,  and I've been on the go ever since.  It's actually 12:13 am, December 26 right now, and it's been over 24 hours since I have had any migraine pain!!  I can tell the botox has taken full effect because I can barely lift my eyebrows up, and my rbf is gone for the most part. :) 

I will try my best to update again in a few days on how I'm doing.  But I'm so so excited and optimistic for this!

Tuesday, November 28, 2017

Migraine

Now that we're caught up with how we got here, I figured I'd talk about my migraines.

I first started getting migraines around 2005.  I really didn't know anything about migraines.  But I had never been in this kind of pain.  I had a really stressful job at the time, and I was dealing with some anxiety as well.  I finally got insurance through my job, so I went to the dr.  He diagnosed it as migraines.  From there, I got either an MRI or CAT scan, I don't remember which one.  The scans came back clear, so he started me on some "preventive medicine" and gave me a prescription for a rescue medicine. I also started tracking my migraines.  At this point I was in pain all the time.  That was driving my anxiety up.

Between 2005 and now I've taken so many different preventive medicines that I don't even remember what all they were.  This is also when I found out that I can't tolerate imitrex (which is one of the biggest rescue meds.)

I've tried going to the chiropractor.  I've done acupuncture.  I've had my eyes checked so many times.

I can remember one day I had an extra bad migraine.  I stapled a blanket in front of the bedroom window and threw a clock off the wall.

I've lost jobs because I called in sick too much.  But there were days when I couldn't even fathom trying to drive to work.

Finally in 2013 I was able to try botox.  It hurts so bad.  But it worked so good for me.  It was a total game changer for me.  I had 2 sessions, and then I lost my job and insurance.

Currently nothing is really helping.  I am in some kind of pain every single day.  It's so frustrating to live in pain and have no idea how to fix it.

I'm scheduled on 12/20 for my first round of botox with a new dr.  I hope it works as well as it did before because I really need some relief from this.

Thanks for reading!


Monday, November 27, 2017

How did we get here? Chapter 2

I had over 100 views on both of my previous posts!  That's a huge deal to me!  Thank you for reading.  Hopefully by sharing my story I can help someone else who is going through a rough time. 

So, the last post ended with me confessing that I wanted to die, that I wanted to kill myself. 

Of course, once my husband and family found out they were upset.  I can't say what they felt, because I've never been in their shoes.  But I know they were hurting.  They were hurting for me.  They were hurting because they trusted me, and I lied to them.  Not just once.  I had been lying for months by this point.  My mom felt terrible, and placed a lot of blame on herself.  She wondered what she had done wrong in raising me that I ended up like this.  I've told her so many times since February that this isn't her fault.  There is absolutely zero blame she should place on herself. 

My first step in recovery was going to my PCP.  She immediately referred me to Laureate (a local psychiatric facility,)  She not only referred me, she called them and made sure I could come in that same day.  My mom was with me.  I didn't want anyone to go with me.  But I'm glad she did.  Because I don't think I would have gone to Laureate that day.  When we got back to the car after leaving the PCP I just sat there for a minute.  Trying to come up with a reason why I couldn't go right then.  But I didn't have an excuse.  So we went. 

When we got there I was scared.  I didn't know if they would admit me right then and make me stay.  It was scary to have to put my purse in a locker and walk through a metal detector. 
I had my evaluation, and they told me they could admit me right then if I felt like I needed it.  She said she didn't think I needed to stay, but they would make it happen if I wanted to.  I didn't want to stay, and I knew I would be ok to go home. 

From there I started seeing a psychiatrist.  The first step was to change my medication.  I was dreading it because of the withdrawals this medicine brings.  I had gone through it once before when I ran out of meds and couldn't get a new prescription in time.  But I knew it was really my only choice.  We had some trouble getting the insurance to pay for the new medicine she put me on, so it took longer to come off the old medicine than we had planned on.  We also did "talk therapy."  She didn't just throw a prescription at me and push me out the door to handle it on my own.  Once again, talking about it out loud was so hard.  It's almost surreal to say those words out loud.  "I tried to kill myself."  But it was good.  And it was something that I knew I had to do to get better. 
Sidenote: Therapy doesn't work for everyone.  A lot of people, me included, think they are smarter than the therapist, so they don't actually allow it to work.  
I made the decision to tell my close friends at work what happened.  I also told most of the management at my facility.  I was so scared of the withdrawals, that I knew they needed to know I may have to step off the line if I got too dizzy or nauseous.  My friends at work responded in much the same way that my sisters did.  Shocked.  Worried.  Thankful I was still alive. 

For me, opening up to my friends and family has helped me tremendously.  That may not be the case for everyone.  And I didn't think it would help me as much as it has.  But knowing that other people know, so I don't have to fake it, has helped me so much.  Along with allowing the therapy to work, having other people I could lean on and talk to helped my recovery. 

My mom and I came up with the motto: One Day At A Time.  So that's been my motto for 2017.  When it gets too overwhelming to think about how I'm going to get through the next week, month, year, I can stop and remind myself, one day at a time.  It hasn't been easy.  And I still have a lot of rough days.  But I'm watching for the warning signs and reaching out when I need help.  It's so hard being honest with people.  My go-to response is always, "I'm fine."  I'm trying not to say it when it's not true.  I'm trying to be honest with my family and friends.  Being honest is a big deal, since I had spent so much time lying.  And I'm trying to teach myself that it's ok to not be ok.  I don't have to lie and say I'm fine when I'm not.  No one expects me to be 100% better all the time. So I shouldn't expect that of myself. 

It's been almost 10 months since I tried to kill myself.  I don't ever say I'm recovered.  I always just say I'm recovering.  I'm pulling myself up from the very bottom, the lowest you can go.  I don't know if I'll ever get to the point where I can say I'm recovered, or I'm all better.  But I'm better than what I was 10 months ago.  I'm still trying to find my purpose here.  God put me here for a reason.  He kept me alive that day for a reason.  So I'm going to live and work and try to find my place and my purpose.  I know my babies need me.  And now I feel like this is part of God's plan for me.  I have to tell my story.  I want my story to spread like wildfire.  If one person can read my story and realize they are not alone...so they reach out for help instead of ending their life.....it's all worth it.  That's why I'm telling my story.  I want to help other people.  Do me a favor.  Share my blog.  You never know who could stumble across it at just the right time. 

Thank you for reading!! Since we're caught up with how we got here I think my next blog will be migraine related. 


Friday, November 3, 2017

Suicide isn't selfish



Hey guys!  Welcome back!  I was originally going to continue with "How we got here" but I wanted to stop and take a second to talk about why I feel like suicide isn't selfish.

"Suicide is so selfish!"  It's a phrase you hear all the time.  It's a phrase that I myself have used.  Unless you've been to that point, the point where you're ready to end your life, you can't understand why it's actually the least selfish thing you can do.

It was really hard for me to make myself understand why other people couldn't understand how I felt.  "Why don't they understand what I'm feeling?"  But, I finally got to the point where I do understand, and accept the fact, that unless a person has been to that point in their own life, they cannot fully understand it.  And that's ok!  It's ok for them to not understand!

Why do I believe it isn't selfish?
Hear me out.  Before you jump to conclusions and think I'm a crazy person who is just making excuses, hear me out.

When you get to the point of suicide, you just want out.  But you're not looking for the easy way out.  It's so far from that.  I can't speak for everyone who has attempted or committed suicide, I'm only speaking for myself.  These are only my experiences and thoughts. 
When I was to the point of suicide, I viewed myself as a burden.  I was a burden to my husband, parents, and sisters.  I wasn't a good enough mom, wife, daughter, sister, or friend.  I felt as if I was failing at everything in my life.  My husband was working his ass off to pay all our bills because I couldn't make myself get out of bed.  Then he had to come home and take care of the kids and the house by himself because I certainly wasn't doing it.  My poor mom was wracked with worry and grief because she felt like she had done something wrong somewhere down the line that had caused me to have these problems.  I was probably on the verge of losing my job because I couldn't make myself go to work.  A burden.  All I was, was a burden.  So if I killed myself, I was actually doing everyone a favor.  All of those people wouldn't have to worry about me anymore.  Their lives would be so much easier if I wasn't around.

Now do you see what I mean?  Those aren't selfish thoughts at all!  That isn't taking the easy way out!  That is making the hardest decision you could ever make, just to better the lives of the people around you!

Now obviously the thoughts aren't rational.  One I got to the other side of that depressive episode I could see that.  But while I was going through it, it seemed perfectly rational.

When I'm at work and I hear someone talking about suicide, it always catches my attention.  I try not to butt into other people's conversations, especially if it's about to cause an argument.  But it is VERY hard for me to hold my tongue when I hear people say the words "suicide is selfish."  A lot of people don't know what I've gone through, and don't know that I attempted suicide.  I know they likely wouldn't be having those conversations around me if they knew.  I know they mean no harm.  But it offends me and hurts my feelings.  I just kinda get that sinking feeling in my gut when I hear those words.

Thanks for reading!  This post wasn't necessarily to change your opinion about suicide, but just to give you a little insight from the other side of the situation.

I will continue with "how we got here" soon!


Thursday, November 2, 2017

How did we get here? Chapter 1

I decided to start a new blog to kinda separate my migraine and depression stories from the rest of my blogging stuff.  Some of my lovely friends helped me come up with the name It's All in My head!  Just in case someone new ventures in, I wanted to start out by kinda going back and explaining how we got to where we are now.  So let's go back a few years.

My mom said looking back I probably had more headaches than normal as a kid.  Not enough to really be overly concerned about it.  I would either go home and sleep it off or the school nurse would give me some tylenol and I would go about my day.  I wasn't diagnosed with actual migraines until around 2005-2006.  I was working my first actual full time, adult job.  It was VERY stressful.  I just thought I had a headache all the time.  I started tracking the headaches on a calendar.  I got insurance through my job and started seeing a dr.  He was pretty shocked with the headaches so we started the journey of trying different medications, doing CT scans, etc.  During this time I also had just gotten married, moved into an apartment, and went through an unexpected early miscarriage.  There were a lot of changes going on in my life during this time, and all of that played a big part in my mental and physical health.

When Jacob, my husband, and I decided we wanted to start trying to get pregnant, I figured it would be easy.  You just assume it's something that will naturally happen.  But it didn't.  I have PCOS.  Month after month we tried and failed.  During this time I got very depressed.  I started taking prozac, at a low dose.  I thought infertility was the reason for the depression.  I had 2 more miscarriages.  Still having debilitating migraines during this time.  I still had a stressful job.  I was missing a lot of work between migraines and depression.  My depression manifests in me being physically unable to get out of bed.  I just can't.  I don't want to brush my teeth, shower, eat...nothing.  I finally got pregnant.  But to my surprise, the depression didn't go away.  One day I had a mild panic attack at work.  Long story short, I ended up losing my job.  It was for the best, as I ended up on home bed rest, and then hospital bedrest.  Alexia Rosemay came early and spent 9 days in the NICU.  The day she finally came home I ended up back in the ER that night with super high blood pressure and a killer migraine.  I got to go back home to her the next day.  Being a stay at home mom was so so hard.  I wanted so deeply to be the kind of mom that loved it.  But I couldn't.  She had colic.  I felt like she hated me.  I needed out of the house.  I had post partum depression and no one noticed it.  On her 9 month birthday Jacob came home for lunch.  When he went back to work I started having a panic attack and just felt so irrational and out of control.  Something inside me just knew that he wasn't going to come back.  I grabbed as many tylenol pm as I could fit in my hand and I was ready to swallow them.  I just wanted to go to sleep and never wake up.  I called him crying.  He rushed back home and immediately took me to the ER.  I started seeing a therapist.  Got some new medication.  Started feeling a lot better and more in control of my emotions.
That was February 2010.  Since then you could describe it exactly like a roller coaster.  Up and down.  Up and down.  With the migraines and depression.  Medication works great for a while and then it starts to fail.  So we start dropping down, down, down, until we hit the bottom and have to figure out a way to start pulling ourselves back up.
I can't even count the number of CT scans and MRI's I've had.  I have a hard time remembering all the antidepressants I've been on.  And all the migraine "prevention" medicines I've tried.  All the "rescue meds."
In 2011 we bought our first home.  We also found out we were expecting our second baby.  That pregnancy was also filled with lots of migraines and bedrest.  I knew what to watch for in my recovery time so I feel like it was a lot smoother this time around.
Around the end of 2016 I noticed the effexor I was taking for the depression was not working that well anymore.  I was having a harder time doing the things I enjoy.  Lack of interest is a big indicator for me.  But, coming off of effexor is so hard and I felt like it would be harder for me to go through that than to suck it up and try to push through the low time.
((((sidenote::for as long as I can remember it has been hard for me to fall asleep and stay asleep.  I have built up a tolerance to everything. Benadryl, ambien, I've tried it all.  I can take a horse tranquilizer and go to work and be fine.)))
I was working weird hours, getting off early in the afternoon, so I would come home and drink like a bottle of robitussin and go to sleep for a few hours.  I didn't do it to feel high or whatever.  I did it to sleep.  When I'm depressed, all I want to do is sleep.  I'm not trying to downplay what I did.  I know it was stupid.  I'm just explaining my reasoning.
February 2, 2017 I was just done.  I took a bunch of pills, robtussin, and ambien.  Planned to be asleep before Jacob and the kids got home.  But they got home and I woke up.  I honestly don't remember what happened that night.  But I know it was bad.  Jacob was scared.  He didn't know what to do.  He wanted to call 911, but he didn't want them to take me away.  So he just laid in bed next to me.  So I tried to lie and say I didn't know what happened.  Because it's embarrassing to tell someone that you tried to kill yourself and you couldn't even do that right!!!  But I finally did tell him.  I wanted to die.  I wanted to be gone before he got home.  I think this post is getting too long, but in the next post I will explain more about being at rock bottom and pulling myself back up to where I am now 9 months later.